Education and Research

Guides and How-To Books for Youth

How to Advocate: A Youth Survivor's Guide to PANS/PANDAS Advocacy
How to Advocate: A Youth Survivor's Guide to PANS/PANDAS Advocacy
$10.00

Wanting to learn more about advocacy, but don’t know where to start? You’re not alone! Everyone who is involved in advocacy once had no clue what the word ‘advocacy’ meant, or how to go about getting involved! This is a comprehensive guide to clarifying every type of bill or piece of legislation that is currently relevant to PANS/PANDAS advocacy. It is geared towards youth advocates to encourage them to dip their toes into making an impact on legislation in their city, state, and even the entire United States of America! We make it easy as pie to understand the complex world of advocacy, and how to make a remarkable impact on the PANS/PANDAS community and broader society.

Misdiagnosed & Misunderstood: Treating Neuroimmune Disorders Extended Edition

NAMI California Extended Neuroimmune Slides
NAMI California Extended Neuroimmune Slides
$15.00

We put our heart and soul into last year’s NAMI California workshop in Sacramento, CA. Many audience members were emotionally touched by our stories, and gained valuable knowledge on neuroimmune disorders (especially PANS/PANDAS). That’s why we have made extended slides to continue to spread awareness and educate audiences on the current science of PANS/PANDAS. This slideshow is meant for parents, therapists, physicians, researchers, and even youth who are passionate about learning more about their condition. If you are a child, teen, or young adult who would like free access to these slides, please email us at nationalpandasyouthalliance@gmail.com to get your free PDF file of the presentation!

PANS/PANDAS is complex. Here are some tools to help break it down for you!

  • Flowchart detailing treatment barriers to PANDAS/PANS, including background, methods, findings on primary and secondary barriers, implications, and proposed studies, with green background and white text.

    Treatment Barriers

    Kate Landis, a PANDAS survivor, PhD student, and Vice President of the NPYA Research Committee has created a graphic to display the barriers to treatment of PANDAS/PANS.

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  • Title page of a research publication titled 'Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections (PANDAS)' by Grace Martin and Kate Landis, with abstract or background imagery of stylized medical illustrations of a tree and a human face outline.

    PANDAS Slideshow

    Kate Landis, a PANDAS survivor, PhD student, and Vice President of the NPYA Research Committee has created a slideshow all about PANDAS.

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  • Logo of the Pandas Physicians Network, a division of the Foundation for Brain Science and Immunology, featuring the acronym PPN with a stethoscope illustration.

    PANDAS Physicians Network Research Tools

    PANDAS Physicians Network (PPN) is an incredibly valuable resource for learning more about PANS/PANDAS. Tap the ‘view’ button to check out their research page!

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